Yesterday was our first full day home without having PT or drs appointments. Connor continues to do well but he has developed what we think are really bad Charlie horse pains in the ach of his foot. We are trying to adjust his meds and try to rub out those foot pains so yesterday was a bit trying. We are still trying to find one of his pain meds as it seems to be one that isn't prescribed much outside the hospital setting. 

He gets himself all worked up and then takes forever to calm down. This med should help with his anxiety level. 

Last night we took Brenden to baseball practice and while we waited for dad to get there one of brendens teammates asked Connor what happened. Connor told him and he asked "Does it hurt?" Connor being in pain smiled and said "No it's not too bad!" He's a trooper! 

We did stretches at home yesterday and Macie laided next to Connor to keep him comfortable!

It really was very sweet!

We have family events that we really don't want to miss but we haven't been home as a family and we need family time as just us. Brenden and Macie need our attention and Connor wants to try and play with Brenden. Each day gets a little better and hopefully soon we will be out and about more frequently with less whining. 

That's it for now, have to work on finding Connors medicine.