Update

Connor had his surgery on June 22. We got there early and got Connor all prepped and ready for the doctors to do the bone plate on his right femur and the Taylor Spatial Frame on his right tibia(We are not lengthening his fibula because it is too small and cannot be lengthened). Surgery went extremely well and Dr.Gordon was very happy with everything. Connor took forever to come out of anesthesia but we finally got to see him around 3pm. Connor and I (Meagan) stayed in the hospital from Wednesday until Monday. Connor had 2 Physical Therapy(PT) sessions each day, once in the morning and once in the afternoon. Connor spent the rest of the time resting and playing electronics and in the playroom which he loves. Sunday morning was a lot for Connor as it was shower day and the day all the dressings came off his leg. even though he has been through this once before it was still quite traumatic to see his leg uncovered. Connor also started the bad foot pain and Dr.
originally thought it was just the AFO strap placement but I knew better, nerve pain had returned. We would get Neurontin (Gabapentin) to control this pain as best we could even though its not 100% its better than screaming in pain. We came home Monday afternoon and got Connor all comfortable at home. We have begun the 3x a week PT sessions at Shriners. It is about an hour drive with traffic and all.

We are now 3 weeks post surgery and Connor is doing AMAZING!! Dr Gordon is very impressed with how well he is doing. Connor is putting tons of weight through the right leg which is what he needs to do to promote bone growth. His measurements in PT are excellent. We do 3x a week PT sessions at Shriners PLUS every day stretches 2x a day. We have found a routine that works best. Pin care is going very well. We soap clean his pin site once every 2-3 days and he showers everyday. We see Dr Gordon this Friday, July 15, for his 2nd follow up.

Brenden and Macie have been staying home with Dad while I take Connor to PT. His work has been extremely flexible allowing him to stay home and help. It has made a world of difference in Brenden and Macie as they get some good time at home and not being carted around the entire city and be bored. Andy works off and on all day getting a lot done for work while also taking time to care for Brenden and Macie. With him doing this he stays up late each night after the kids go to bed and works late into the night to make sure he stays on top of his work load. He has been working very hard for us and I am thankful this company understands and is allowing him the flexibility he needs to help me out.

It still is very stressful around here. Though I highlight a lot of the good I try and keep the negatives out, but there are still very hard and trying days. Connor gets frustrated Macie and Brenden miss me and want more time with me. Connors pain can get quite intense and its hard to comfort him at those times. Andy and I are working extra hard at trying to keep our cool with eachother and the kids. Being either here at home or driving to shriners after a while gets old and we get crabby at eachother. It is not an easy road we are on but we are doing our best and we have had plenty of great quality time as a family watching movies or playing games together trying to make the best of a difficult situation.


Thank you for all your prayers and support.
Meagan