Thursday, April 3, 2014

Long restless night turns into day.

Overall, compared to the other two boys who had this surgery yesterday as well and who are quite a bit older than Connor, he is doing really well.

Last night was long. He was on the PCA pump with morphine and because of this his vitals were checked every 2 hours. Also a side effect of morphine is itchiness and poor Connor has it bad. He seemed to finally be comfortable around 4:15 when 5am arrived Mother Nature decided she wanted to test my limits and throw in tornados. All 11 kids on the floor were moved in their beds into the hall, 11 is a very high number here their norm is 3!!! Anyways, we finally got the all clear to go back around 6. He was running a slight fever during all this as well! Kid just could not catch a break. We stopped his morphine this morning around 8:30 and he has been well controlled ever since. He did have his first huge muscle spasms and oh how I wish these were not part of this. The poor kid freezes in INTENSE pain until it stops. He is so tough, a grown man would not be able to handle this. Connor started PT today and got up to his walker and got into bed a few times. He's using a wheel chair for now but this is not part of the plan. We had visits from Macie, Daddy, GG and Papa OG today. Connor got to play in the rec room a few times and seemed to enjoy it. In all I think today went pretty well.  

Tomorrow we begin the pin turning. We have a schedule we will follow but I don't remember all of it as this momma is running on about 5 hours of sleep over the last 36 hours. When I get the schedule I will post it. He will have 2 PT sessions tomorrow just like today, 1st at 9am with a very special friend from DASA named Myles! These two boys when are together can't stop laughing and talking! A great friendship!! The 2nd will be in the afternoon. I am not sure exactly when we will turn the pins but Connor is very nervous about this. We have more visitors tomorrow that Connor is ready to see including Myles Mawmaw Aunt Gina Aunt EE and Aunt Manda(in order of apperance:)) Seems that Sunday he will get a shower and the dressings will be removed and we will learn the pin care then. 

As I am writing this, once again St Louis weather is making things a bit more challenging. It is 8:30pm and we have have been moved into the hall for tornados twice in the last half hour. And it is of course time for Co. It's meds and fortunately he is resting nicely. Thank you to all for the continued thoughts and prayers! I was very touched by Connors principal who took time this morning to just call and see how he was doing. We really are in the best community and have an amazing support system! Thank you to all our families, friends, DASA, Everyone at Lakeview Elementary, the caring coworkers Andy works with at Peaody and especially the care we are getting here at Shriners! I will update tomorrow night with all the new and exciting things happening with Connor!

PS-I have not seen Brenden since early yesterday but I am so proud of him for helping and being such an awesome big brother and Macie for being our sweet little princess giving Connor a huge kids when she saw him today!

~Good Night~

2 comments:

  1. Thanks for sending me this link, Meagan. Thoughts and prayers for your entire family. Tell Connor I am so proud of how strong he is!

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  2. Thanks Melissa! He's getting stronger and better each day!

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