Playing catch up

Yesterday was a very overwhelming day. 

We were very ready to come home but we had a jammed packed day with 2 PT sessions and a shower plus all the discharge information we needed to discuss. 

Connor started the day in PT and he walked on his leg for the very first time! He was very scared because of the unknown but he did great!! His first steps just as special as his first steps he took when he was a baby, even more so because he did it with a trendous amount of pain. I am not going to sugar coat anything here for a minute...his PT sessions he is in excruciating pain! The fear and pain in his eyes, the begging and pleading and the "I'm sorry! Please stop I'm sorry!" As if he did something wrong. These stretches are CRITICAL in this whole process and I am the one who has to impart this pain onto him. It is a helpless feeling watching your child suffer and ask "Why Me?" "I don't want to do this anymore!" And we have to stay strong and try and get him to focus that this won't last forever and it will get better. 

On the positive side he was home last night with his best friend and the boys were just smiling and giggling like before! It really is the small things that we take for granted. He had a decent night last night only waking up once for pain and once to go potty. He woke up happy this morning and was happy when we arrived at Shriners for his PT. We have 2 PT sessions today and his first one he walked farther than before but was not scared and was talking and said "hey look I'm doing it!" Then he proceeded to balance on both feet for a few seconds without a walker or support! But then the stretches came and it was hell all over again. After the 1st round we went to chick fil a and then headed back. This time he was very tired. BUT we talked and he was able to do most stretches without screaming and then near the end had to remind him not to scream as loud. He did amazing considering the amount of pain he was in, and I think some is him just scared of some of the stretches. 

We made it home before Brenden got home and as soon as he was home they were playing Legos then minecraft!! Daddy bought a chair for the shower and Connor had his first shower at home. He showed off his mad skillz and walked to the stairs then went up and then back down after his shower! He is doing so well. We still have tummy time tonight, which he does not like but hopefully doing it in his bed rather than a PT bed won't be as bad. 

Tomorrow is X-rays PT and dr visit all in the morning. Hopefully things are moving in the right direction!!